merytankh (merytankh) wrote in livingwithscha,

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Hi all. My name is Sarah. I do not have this disorder myself, but my fiance does. We have no way to treat his illness, and don't know the first thing to do for him. I was hoping that I might find some insight among others that I could share with him, to give him hope that he is not struggling alone.

It becomes a struggle for myself, as well, as every day I learn new things about his disorder. I have to find ways to cope and help him cope, and to let him know that I am there for him.

I hope that doesn't void my ability to be apart of this community. Like I said, I am at a loss for what to do for him. Our resources are extremely limited, and he is so isolated that it is hard for him to understand that there are other people living active lives with the same thing he has.

Thank you for allowing me to at least say that.